20 ’embarrassing’ fibromyalgia symptoms we didn’t talk about

If you suffer from an eternal ailment like  fibromyalgia , you are already aware of the annoying and adverse symptoms that it entails. You shouldn’t feel embarrassed and miserable about the symptoms and side effects you are experiencing, but it will cause you embarrassment when you forget what you were saying in the middle of an important work meeting due to mental confusion, or fall off gout. all the dishes in the kitchen due to a sudden outbreak of pain he felt.

Each fibromyalgia patient suffers from different symptoms, so it is necessary to talk about their less glamorous symptoms, in order to educate people to solve the complexity of this condition. That’s why the   Mighty community  To solve the problem, share some of the “embarrassing” symptoms of fibromyalgia that you have been through; those symptoms that most of the time remain hidden, but that undoubtedly deserve recognition and consideration.

Fibromyalgia symptoms, including fibromyalgia and the negative effects of medication, can cause physical, emotional, and cognitive problems. If you are experiencing any of the following symptoms, know that you are not alone.

Here’s what the powerful community had to say:

1. Mental fog

“Fibro fog takes the cake. There is nothing more embarrassing to me than talking to someone on the phone, or really anyone in general, and constantly using filler words because I have trouble finding the words I need to express during conversation. I use a lot of Post-it notes and set reminders for almost everything. ” – Bee E.

“Not being able to process what someone is telling you and then appear rude for asking what they said more than once because to your brain they may also be speaking gibberish.” – Dani S.

“Definitely brain fog. It’s so embarrassing to lose track of my thoughts in the middle of a sentence and be unable to carry on an intelligent conversation or completely forget something someone said to me. It is awful.” – Molly S.

2. Too much sweat

“For me, I think it is   excessive sweating for no apparent reason. The inability to regulate your own body temperature is frustrating. ” – Rachel P.

Sweating!  The slightest amount of movement and I’m overheated and sweat is dripping down my face. I’m everywhere at work and always on fire. It’s really cold outside and the other girls have an extra heater next to it and here I’m dying with a fan! ”  – Christina K.

“As a 27 year old woman [with] both fibromyalgia and   endometriosis  I often suffer from very bad hot flashes. It’s embarrassing to suddenly start fanning myself or removing certain items in an attempt to ease the discomfort. ” – Emily G.

3. Always  cancel plans

“The most embarrassing part is having to cancel plans because I don’t feel well enough to go out. Eventually, they label you as ‘that person.’ – Lauren H.

“I am ashamed to have to cancel plans without prior notice. The pain and / or fatigue is more than I can bear some days and I have to cancel something I really wanted to do! ”  – January SP

4. Overdrive sensorial

“When there are too many people talking at once or too much noise, my head races and I get so stressed out that I could explode. It’s so hard to hide how it affects me. ” – Annie T.

“One thing I can’t do much anymore is watch ‘Price Is Right.’ There is too much noise and screaming. And I’m getting to where I can’t see it like I used to. ” – Terri S.

5. Exhaustion

“I don’t have enough energy sometimes to do simple everyday things like shower or cook dinner for my kids or even some days I can’t get out of bed to do things with my kids.” – Skye L.

“The complete lack of energy. I understand that it is my fibro. Others just look lazy. ” – Michelle P.

“Fatigue. When it hits, I have to sit up immediately, no matter where I am. Morning Burnout  Sucks ”- Lisa T.

6. Weight change

“I am tired of my weight gain. I can’t help it and I’m ashamed to see people who knew me before. ” – Leah M.

7. Gastrointestinal problems

“Gastrointestinal disorders. I always feel uncomfortable telling my doctors about my GI-related symptoms, whether it’s nausea, constipation, or diarrhea. ” – Mattie M.

“I have diarrhea. My stomach problems interfere with my life constantly. Last Thanksgiving I had to sit and watch everyone eat. He was too terrified to eat from the diarrhea. It never ends. Sometimes I go days without eating because of that. ” – Melissa G.

“IBS [  irritable bowel syndrome ] and all the beauty   that goes   with it. I have to avoid certain foods just because I have become very sensitive to them. Not just because of the embarrassing symptoms it brings, but also because of the cramps, headaches, and breakouts that come with eating ‘bad food.’ – Ashley A.

8. Back and leg pain

“Back and leg pain. I cannot sit, stand, or walk for more than 30 minutes at a time. I am constantly moving if I am standing or have to lean over something. People think you’re lazy, but my legs literally want to give up! ”  – Meena N.

“I love being active and going to places like the zoo or amusement parks with friends. But when I’m in an environment where I walk a lot, I’m embarrassed to have to keep taking breaks due to my knees and hips. When I’m 23, people my age can get upset about my need to stop, and sometimes I get questioning looks from older people or comments like ‘you’re too young to have these pains’. Usually I try to push myself as hard as I can, but that only makes the pain worse when I finally break down and take a break. ” – Shelby C.

9. Rashes / hives

“The red rash that appears on my neck out of nowhere. Sometimes it’s just in one place, sometimes it all ends. When in a place, people sometimes think I have a hickey. It’s a bit embarrassing. ” – Krystina KF

10.  Dizziness  and balance problems

“My  balance . It has gotten worse and I have fallen when I should have been able to save myself; the one outside a friend’s house in his flowerbed was the worst, as he was in shock (he really doesn’t know what I have). ” – Lisa B.

11. Hypersensitivity to sensory stimuli

“My poor intolerance to heat, smells and smoke. As if I was dressed appropriately and eager for a social gathering, then the feeling of discomfort appears with intense sweating and dizziness due to the ‘heat’ that my body is perceiving. Add the smell or smoke of a kitchen, whether at home or in a restaurant; barbecue is my nemesis. I want to enjoy myself, but my body refuses and others see me as a killjoy or just too fussy. ” – Vee Vee Y.

12. Temperature sensitivity

“Being so cold. All time. I live in texas. During the summer I wear sweaters and I always have to wear a jacket wherever I go. It’s over 100 degrees, so everywhere the air conditioning is on and I’m trying to warm my hands enough to feel them. ” – Kristi R.

13. Generalized muscle spasms and pain

Spasms Almost constant jerks, some of which are   huge   and people look at you strangely, because you can’t control your own body. ” – Rhian S.

“My feet and legs will jerk or twitch. I often yell or yell when it happens because it hurts. People stare at me and that makes me incredibly self-conscious. I can not control it “. – Elyse B.

“The random back spasms that leave me unable to walk while in the middle of a store. I don’t like being the center of attention and nothing screams ‘look at me’ like not being able to move ”. – Megan M.

“I have random muscle spasms. It makes me drop things a lot. ” – Danika S.

14. Have the “sneezes”

“The constant sneezing / coughing / dry mouth caused by my medications. Really uncomfortable being in certain places and coughing and sobbing. When my sister had her baby, she was holding her and sobbing, and some thought she was sick and holding a newborn! No! Sorry, only my meds make me look like this! ”  – Garnet D.

15. Sensitivity of the skin to the touch

“When someone is going to touch me, I always shudder because I know it will hurt.” – Amanda P.

“When I have to tell people, please don’t hug me goodbye or greet me because it hurts too much.” – Audrey M.

16. Problems with speech

“Not being able to speak. I forget words, I stumble over them, I say words that don’t make sense. What’s worse is that I work with children and parents just look at me sometimes and I feel so [silly] that I can’t express my thoughts smoothly. Just writing this has taken me 15 minutes because I had to go back and rewrite words that were very misspelled or made no sense. ” – Marissa E.

“I mix up the words and it comes out so weird! People look at me weird because sometimes it sounds so [silly]. Fibrous fog is the worst! I kept saying potatoes instead of donuts once. So embarrassing. ” – Eloise T.

“Mental fog… When I can’t remember the words. You could be looking directly at something and can’t remember its name. It’s there, on the tip of my tongue, but the words don’t come out. ” – Paula D.

17. Urinary incontinence

“Incontinence! It’s very embarrassing, I have to wear panty liners all the time. And as if that wasn’t bad enough, I have random bladder cramps. Like all of a sudden and out of nowhere my bladder is cramping and I have to go right away. It has caused me accidents “. – Morgan V.

“In fact, I can urinate every 15 minutes. I thought it was just me, I had no idea it was because of the fibro! Road trips suck! ”  – Shelby LS

18. Emotional sensitivity

“With pain, when it is really bad, I get angry, with pain, with myself and with others. I try to warn the people I work with on a very painful day that if I start to cry or look irritated, it is not because of them, it is because of the pain. ” – Trish G.

19. Reaction to sudden pain

“My most embarrassing symptom is the sudden throbbing pains that automatically make me change my expression and stop what I’m doing, whether it’s at work or with family. When that happens, everyone notices the sudden change and then asks what happens because I still look ‘fit’ or ‘healthy’. ” – Katherine L.

“Spontaneous stabbing pain that is sometimes debilitating. I can have a perfectly good day and a sharp pain comes out of nowhere, making me wince or even scream in pain. ” – DeAnna AC

“When my body suddenly locks up, or when I can’t get off the couch without making an embarrassing grunt. I often wonder if people realize how hard it takes me to do these things. ” – Terri SA

20. tiredness

“The depletion. I can’t do anything for long or I get so tired that it becomes painful to keep my eyes open. I’ve had to cut back on my work hours and I’m barely making it. I need to take a nap to get through the day. ” – Kirsten MR

“Exhaustion and seclusion. Fibromyalgia makes me very exhausted and, in turn, I withdraw because I’m embarrassed that I can’t go to do things like get together with friends and family for dinner after working all day. ” – Koroleva V.

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