Chronic pain is increasingly rampant today.
However, chronic pain and chronic diseases are often invisible. In many cases there are no dressings, visible rashes, or nasal discharge involved.
Those who suffer from chronic pain often appear “normal,” perhaps a little more fragile or sad than average. I suffered from chronic headaches for four and a half years and chronic hip pain for two and a half years.
He often seemed depressed, disinterested, and angry when I was simply in pain.
There were many days when I couldn’t get out of bed. After a conversation, sometimes it became difficult.
I lost a job because of my pain. I canceled plans and ignored my friends, I felt misunderstood and alone. I was suffering. I know the answer was there and I was finally cured.
However, at that moment I wanted to shout from the top of my lungs all the things that all chronic pain sufferers want me to know:
1. Just because you can’t see him doesn’t mean he’s not in pain.
2. Not everything is in my head.
3. It’s not just the flu. It won’t go away in a week.
4. Please never say “Just don’t think about it.” Having constant pain is impossible.
5. Hugs can work magic. So they are good messages. I need to know that you are here for me.
6. Thank you for sharing the “magic cure” you have read online. Trust me, I’ve heard of it and if it was relevant I gave it a try.
7. I am trying very hard to lead a normal life.
8. I do my best not to cancel plans and never cancel plans, if I could.
9. I can’t get out of it.
10. Some days are better, some days are worse. Some days I can even feel almost normal, other days I can’t even get out of bed.
11. I care about you. I want to know about your life and your dreams. I want you to be happy and healthy.
12. My chronic pain is different from other people’s chronic pain. All diseases and symptoms of pain are unique. Our experiences may differ, but we all feel pain and can relate to each other.
13. Please don’t try to convince me to drink and “live a little.” All I want is to live a little, actually live a lot. A drink, however, is the last thing on my mind.
14. If I look depressed or bored, it means that I really am in tremendous pain and I am doing my best to appear happy and normal.
15. I can’t explain what chronic pain feels like. However, I can’t say, “You’ll know once you have it” because I never want someone to feel so much suffering.
16. I need a lot of sleep. But sleeping can be difficult with so much pain and it often still leaves me exhausted.
17. Just because you have chronic pain doesn’t mean you know how to manage or live with it.
18. Sometimes I feel like I’m in a prison, living someone else’s life.
19. I still have interests, passions, goals, and dreams.
20. I don’t want you to forget me. I don’t want you to give up.
21. I have not yet given up on healing. Deep down I know there is (or will be) an answer out there.