What you need to know about fibromyalgia:
Fibromyalgia is not a new kind of disease. In 1815, William Balfour, a surgeon at the University of Edinburgh, described fibromyalgia. Over time, it has been described as chronic rheumatism, myalgia, or fibrositis. Unlike diseases, syndromes such as fibromyalgia do not have a known cause, but they are a group of signs and symptoms that, unfortunately, are present at the same time for the patient. Rheumatoid arthritis and lupus are also related syndromes.
Most symptoms and emotional problems connected with fibromyalgia are not of psychological origin.
It’s not a disease in which “everything is in your mind.” In 1987, the American Medical Association acknowledged that fibromyalgia was a true physical disorder and a significant cause of disability.
Fibromyalgia can be disabling and depressive, which can interfere with simpler daily operations.
-What you need to understand about me:
1. My pain:
It’s not your pain, my pain. It’s not triggered by inflammation. It won’t assist me to take your arthritis medication. I can’t work because my body doesn’t withstand that. It’s not the pain that only stays in one portion of the body. It’s on my shoulder today, but it might be one foot tomorrow, or maybe it’s gone. My pain is triggered by signals that wrongly reach my brain, potentially owing to sleep disturbances. It’s not very well understood, but it’s genuine.
2. My fatigue:
Not only do I feel very tired. I’m very exhausted. I’d like to be part of physical activities, but I can’t. Please don’t take it personally, please. If you saw me shopping yesterday, but I can’t help cleaning the yard today, it’s not because I don’t want to. I pay the price for stressing my muscles beyond their capacity.
3. My issues with concentration:
All of us who have fibromyalgia call these issues “fibro-fog.” I may not remember your name, but I remember your face. You may not remember what I promised to do for you, even if you told me just a few seconds ago. My issue has nothing to do with age, but it may be linked to sleep disturbances. I don’t have a selective memory. Some days, I don’t even have a short-term memory.
4. My own clumsiness:
If I stand up or run after the crowd, I’m not going to chase you. I don’t have the control of my muscles to do that. If you’re on the ladder behind me, be patient. These days, I’m going to take life and every step one at a moment.
5. My sensibility :
I can’t remain right here! This may be due to certain variables, such as bright light, very noisy or low noise, odors. Fibromyalgia has been called a “disorder that makes everything worse.”
6. My intolerance is as follows:
I can’t stand the heat or the moisture. If I am a guy, I’m going to sweat a lot. Well, if I’m a lady, too. And don’t be amazed if I move out of control when it’s cold. I don’t tolerate the cold, either. My inner thermostat is broken, and no one knows how to fix it.
, my depression:
Yes, there are days when I prefer to remain in bed, at home or to die. Severe pain is unrelenting and can trigger depression. Your genuine interest and comprehension can take me out of the abyss.
8. My stress, my stress:
My body can’t handle stress well. If I have to stop working, work part-time, or delegate my duties at home, it’s not because I’m lazy. Daily stress can make my symptoms worse and disable me completely.
9. My weight is as follows:
I could be overweight or thin. It wasn’t my choice, either way. My body is not your body. My appetite is affected, and no one knows how to fix it.
10. My need for treatment:
Don’t envy me if I need a daily massage. My massage is not your massage Consider what a massage can do in my body if the pain in my leg last week is what I feel in my whole body. The massage can be very painful, but I need it. Massaging can help on a regular basis, at least for a while.
11. Well, my good days:
If you see me smiling and working normally, don’t assume I’m feeling good. I am suffering from chronic pain and fatigue, which has no cure. I could have a good morning, weeks or even months. It’s actually a good morning that allows me to move on.
12. The individuality of me:
Even those who have fibromyalgia are not the same. That means I can’t tell you all the symptoms. I may have migraine, pain in my hips, shoulders, or knees, but I don’t have the same pain as anyone with this condition.
I hope this helps you understand me, but if you still have doubts about my pain, your bookstore, your library, or the Internet, they have good books and articles about fibromyalgia.
Author’s Note: This letter is based on conversations with women and men around the world with fibromyalgia. This is not one of the 10 million people with fibromyalgia in the world, but it can help healthy people understand how devastating this condition can be. Please don’t take the pain of these people lightly. You don’t want to spend a day in their shoes or their bodies. Fibromyalgia is not something that we choose to have, but if we do, we must reach a point where we accept the condition as part of our lives.