El dolor crónico es cada vez más desenfrenado hoy en día. Leyendo las siguientes líneas rompió mi corazón y lágrimas corrió por mi cara. Todos los sufrimientos que mi madre sufrió y el dolor que soportó empezaron a destellar ante mis ojos. Espero que leer estas líneas le daría una idea de cómo es la vida de las personas con dolor crónico.
“Sin embargo, el dolor crónico y las enfermedades crónicas son a menudo invisibles. En muchos casos no hay yesos, sarpullidos visibles o secreción nasal involucrados. Los que sufren de dolor crónico a menudo parecen “normales”, quizás un poco más frágiles o tristes que el promedio. Sufrí de dolores de cabeza crónicos durante cuatro años y medio y de dolor crónico de cadera durante dos años y medio.
A menudo parecía deprimido, desinteresado y enojado, cuando yo estaba simplemente en el dolor. Había muchos días que no podía salir de la cama. Después de una conversación se hizo difícil a veces.
Perdí un trabajo debido a mi dolor. Cancelé planes e ignoré a amigos. Me sentí incomprendido y solo. Yo estaba sufriendo. Sé que la respuesta estaba ahí y finalmente me curé a mí mismo.
Sin embargo, en el momento en que quería gritar desde la parte superior de mis pulmones todas las cosas que todos los enfermos de dolor crónico quieren que sepa:
- Sólo porque no puedes verlo, no significa que no estoy en el dolor.
- No es todo en mi cabeza.
- No es sólo la gripe. No desaparecerá en una semana.
- Por favor, no digas nunca, “Simplemente no pienses en ello.” Estar en dolor constante esto es imposible.
- Los abrazos pueden hacer magia. Así que son buenos mensajes. Necesito saber que estás aquí para mí.
- Gracias por compartir la “cura mágica” que has leído en línea. Confía en mí, he oído hablar de él, y si era relevante, lo he probado.
- Estoy tratando muy duro de vivir una vida normal.
- Intento mi maldito mejor no cancelar planes y nunca cancelaría planes, si tuviera una opción.
- No puedo salir de ella.
- Algunos días son mejores, algunos días son peores. Algunos días incluso puedo sentirme cerca de lo normal, otros días no puedo ni siquiera salir de la cama.
- Me preocupo por ti. Quiero saber sobre tu vida y sueños. Quiero que seas feliz y saludable.
- Mi dolor crónico es diferente del dolor crónico de otras personas. Todas las enfermedades y los síntomas del dolor son únicos. Nuestras experiencias pueden diferir, pero todos estamos en dolor y podemos relacionarnos unos con otros.
- Por favor, no trate de convencerme de beber y de “vivir un poco”. Todo lo que quiero es vivir un poco, de hecho, vivir mucho. Una bebida, sin embargo, es la última cosa en mi mente.
- Si me veo todos deprimidos o aburridos, significa que estoy realmente en un dolor tremendo y haciendo todo lo posible para parecer feliz y normal.
- No puedo explicar cómo se siente el dolor crónico. Sin embargo, no puedo decir, “sabrás una vez que lo tengas” porque nunca querría que alguien sintiera tanto sufrimiento.
- Necesito mucho dormir. Pero dormir puede ser difícil con tanto dolor ya menudo todavía me deja agotado.
- Sólo porque tengo dolor crónico no significa que yo sepa manejarlo o vivir con él.
- A veces me siento como si estuviera en una prisión, viviendo la vida de alguien más.
- Todavía tengo intereses, pasiones, metas y sueños.
- No quiero que te olvides de mí. No quiero que te rindas conmigo.
- No he renunciado a la curación todavía. En el fondo sé que hay (o habrá) una respuesta por ahí.”
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