I learned a lot about fibromyalgia.
I wish some things, I would never have experienced it, while others made me a better person.
These are the five things I have learned:
1. It’s okay to say no.
I spent most of my life satisfying everyone, so I rarely said the word “no.”
Now it seems to be the only answer to any question you ask me.
No, it was something he did not like.
I felt like leaving people.
Learning to say it and not feeling guilty was difficult.
I realized that my body does not allow me to do anything I want.
It’s not my fault and I should not feel guilty.
I am no longer a volunteer or register for events or projects because I can not always fulfill my obligations. I hate to break off at the last minute, but sometimes it is necessary.
I talked to family and friends so they understand that there are times when, for health reasons, I can not do what is planned.
If you do not understand it, it’s your problem, not mine.
2. Not all doctors know what they are doing.
Doctors are ordinary people.
They make mistakes. They do not know everything.
They have bad days and sometimes they make decisions they should not make.
If I think that a doctor does not understand what I say or do not listen to, I leave it there.
It’s time for a new doctor. Getting a second opinion or even a third is not a bad thing.
If I’m not feeling well, I’m going somewhere else.
My health depends on well-informed doctors who take the time to listen to me.
3. Listen to your body.
I do not like to admit it, but I have caused some of my pain and suffering myself.
I did not listen to my body if I should have.
If I’m in a lot of pain, I’ll rest now. I do not push myself like I did when I was younger.
Being in harmony with your body is one of the best ways to know when a crisis is coming. I have signs that I’m looking for.
Headaches and shoulders are often the first signs that a crisis is imminent.
I can not stop it, but I can be prepared for that.
4. I have discovered who my true friends are.
I lost friends and family because of my illness.
I learned in the worst way who really cares about me.
I have fired some people because it was bad for my health to be near them.
Why do I want to face negativity and reproaches?
I prefer the people who build me, not the ones who tear me down.
5. I am not alone
And you are not. When I started showing symptoms, there was not computer and internet.
Now we have the world at hand.
Online support groups have been a source of friendship and love.
There are so many around the world who feel like me … Now I have friends with whom I can express my feelings, which I find to be cleansing.
I appreciate the friends I made online.
I met some amazing fibromyalgia warriors who taught me more about this disease and also showed that I’m still interested!
My illness does not define me, but it changed my life in a way I never imagined.
Taking the time to really think about what fibromyalgia taught me has given me a new appreciation of life.
Seeing how I’ve evolved over the years is not as depressing as I thought.
Although I’ve suffered physically and emotionally, that’s why I’m a stronger person.