He’s still exhausted and it hurts all the time. Neuchâtel’s Patrick Schutz suffers from fibromyalgia-an chronic disease that disability insurance does not understand.
Pain, pain, nothing but pain: Neuchâtel’s Patrick Schuts (41) still thinks he has the flu-without fever, but with immense tiredness of lead. He wants to stay all day in bed and spend time there. “Every part of my body hurts, fortunately not at once,” he told the “L’illustré” magazine.
Patrick Schutz and his partner’s daughter, Naya, is three years old.
Even if he only plays 20 minutes with it, the power is lost throughout the day. “I’m as exhausted as I’ve ever slept while I sleep, so I woke up.” He lost many friends who think he’s lying. We can’t go out with them in the evening like before, go to bed at 7 pm to relax.
A year later, his debilitating diagnosis revealed: fibromyalgia. It is estimated that in Switzerland 400,000 people are affected. The problem:
Disability insurance (IV) does not accept fibromyalgia. There is no scientific evidence: blood and X-rays do not provide any evidence. Fibromyalgia is characterized by hundreds of symptoms. It is determined by the absence of other diseases and a test: usually soft spots are used.
If there is a rise in discomfort in 11 or more of the 18 (soft spots), there is a possibility of fibromyalgia. Both diagnostic points are similar to the approach of the tendon-motor. The cause of the disease is unknown, so clinical treatments can only limit it.
The defense of Patrick should take other medications: painkillers, antibiotics, supplements, stomach-protective drugs, and drops for irritated or dry eyes. “This is an unseen discomfort,” says Security. He wants to get to know him as many people as possible, he built a Facebook site so that fibromyalgia enters the population’s consciousness.
For two years, Patrick has been unemployed and relies on social support. If the IV understood the pain at least partially, it would have already been saved. Because of his anxiety and chronic fatigue, he needs financial support. His greatest hope is a recent campaign that has just been launched, demanding that fibromyalgia be identified as a condition.
He is playing with his daughter Naya, but his strength is drained after 20 minutes.
To relieve the pain, Patrick lies on a carpet.
The relationship between Patrick and the couple from Sylvie has also become complicated. Since he sleeps early, there are no that TV songs. Naya is shocked that at the same time Dad is going to sleep. Patrick Schutz doesn’t know how long his condition can last: “I’m only 41 years old, living in an old man’s body!”
Patrick thinks the past can cause more traumatic experiences. He was present when his father killed a man with a rock before his eyes at the age of 17.
There’s no touch with Patrick. His daughter’s birth was also bad: nearly the mother and child were dead. Patrick: “These things have shaken me profoundly.” He hopes to do something with his wife and daughter, but his misery and the little money he gets doesn’t make the wish come true.
