Chroniese moegheidsindroom (CFS) en fibromialgie (FMS) is verswakkende en chroniese siektes wat sleg verstaan word en wat mense van beide geslagte en alle ouderdomme kan tref. Vennote, vriende en familielede van mense met CFS of FMS voel dalk verward en hulpeloos, sonder om te weet wat om te sê of hoe om hulp aan te bied.
Dit is baie moeilik om die pyn en beperkinge wat hierdie siektes ongemaklik veroorsaak, waar te neem, wat bydra tot die gemoedswisselings, gebrek aan slaap, prikkelbaarheid wat chroniese pyn veroorsaak en ‘n gebrek aan gesonde rus, wat die dag tot dag siek maak en familielede in ‘n voortdurende stryd om balans te handhaaf en gesinseenheid te handhaaf.
Nie almal is in staat om hierdie situasie die hoof te bied nie, en daar is nog ‘n lang pad om aanvaarding te bereik, waar sielkundige ondersteuning nodig is, en met inagneming van hierdie baie belangrike sleutels:
Sit jouself in die skoene van jou familielid en probeer dit verstaan
Die meeste mense weet baie min, indien enigiets, van CFS en FMS. Albei siektes behels veel meer as net “‘n bietjie moegheid” of “‘n paar pyne.” As u ‘n vriend of geliefde met CFS of FMS het, moet u soveel as moontlik oor hierdie siektes leer. Hoe meer u van u geliefde se siekte weet, hoe meer sal u hulle kan ondersteun.
CHRONIC FATIGUE SINDROOM (CFS)
Chroniese moegheidsindroom (CFS) is ‘n chroniese en verswakkende siekte wat die brein en verskeie dele van die liggaam aantas. Dit veroorsaak uiterste moegheid wat nie verminder word deur in die bed te rus nie en wat dikwels vererger word deur liggaamlike of geestelike aktiwiteit. Simptome duur minstens ses maande en is ernstig genoeg om daaglikse aktiwiteite te beskadig of in te meng. Simptome wissel van persoon tot persoon en kan insluit:
Chroniese moegheid wat nie met bedrus verminder nie en wat dikwels deur liggaamlike of geestelike aktiwiteit vererger word
Algemene swakheid
· Spierpyne
Gewrigspyn sonder ontsteking of rooiheid
· Hoofpyn
Korttermyngeheue- of konsentrasieprobleme
Vergeetagtigheid of verwarring
Prikkelbaarheid, angs, buierigheid of depressie
Lae koors, gloede of nagsweet
· Seer keel
Tere limfknope
Sukkel om te slaap of om nie uitgerus te voel nadat u geslaap het nie
Langdurige moegheid wat 24 uur of langer duur na die oefening
Sensitiwiteit van die oë vir lig
Allergieë
Duiseligheid
Borspyn of kortasem
Naarheid
FIBROMIALGIA (FMS)
Fibromialgie is ‘n chroniese afwyking wat wydverspreide pyn en styfheid in spiere, senings en ligamente veroorsaak, tesame met ongemaklike slaap en moegheid. Simptome wissel van persoon tot persoon en kan insluit:
Moegheid of algemene moegheid
Vermindering van fisieke weerstand
Algemene pyn en pyn in spiere, senings en ligamente
· Spierstyfheid of spasmas
Pyn in spesifieke liggaamsdele, veral:
o Nek
o Skouers
o Bors
o Espalda (bo en onder)
o Heupe en dye
Slapeloosheid of gebrek aan slaap
Gevoel van gevoelloosheid of swelling (alhoewel die swelsel nie eintlik voorkom nie)
Chroniese hoofpyn, insluitend migraine
Oggendstyfheid, erger as dit eers ontstaan
Moenie hulle ongeldig maak nie, moenie dat hulle slegter voel nie
Sommige mense dink dat individue met CFS of FMS lui is, hul simptome oordryf of aan ‘n psigiatriese siekte ly. Hierdie mense kan verkeerdelik glo dat hul geliefde net ‘n bietjie harder gedruk moet word. Mense met CFS of FMS voel dikwels kreupel as hulle hoor:
– “Ek sien jou goed” (onderliggende uitskakelende boodskap: “Jy lyk nie siek nie, so jy moet oordryf of voorgee”)
– “O, ek het sulke simptome gehad.” “Ek word ook moeg” (onderliggende uitskakelende boodskap: “Wat is die probleem? Almal raak moeg. Rus eers”)
– “Het u probeer … (‘n voorgestelde behandeling)?” (onderliggende uitskakelboodskap: “As u nie hierdie middel gebruik of iets doen om uself te help nie, is dit u skuld dat u steeds siek is”)
– “Is jy nog siek? (onderliggende uitskakelboodskap: “Wat is fout met jou? Dit is jou skuld dat jy nog siek is”).
Erken die pyn van u familielid of vriend
Die feit dat u die siekte ontken, laat dit nie verby gaan nie.
Mense met CFS of FMS kom dikwels voor baie uitdagings te staan, waaronder:
Nie ernstig opgeneem word deur u familie, vriende, base en selfs u dokters en ander gesondheidswerkers nie
Die onsekerheid van u siekte
Verminderde vermoë om aan vorige vlakke van professionele, sosiale, opvoedkundige en persoonlike aktiwiteite deel te neem
Afhanklikheid en gevoel van isolasie
Baie mense gebruik ontkenning om ‘n chroniese siekte van ‘n geliefde die hoof te bied. In plaas daarvan om te luister, te glo en medelye te hê met wat die persoon deurmaak, bespreek hulle die feite en verminder hulle die erns van die situasie.
As u die situasie van u geliefde ten volle erken, vertel u hulle dat u regtig omgee, liefhet en ondersteun. Die volgende wenke kan help:
-Erken die moeilikheid: “Ek kan my nie voorstel hoe moeilik al hierdie veranderinge vir u moet wees nie.”
-Erken verliese, hartseer en woede: “Ek is jammer dat u u werk moes ophou.” “Dit moet verskriklik wees dat u nie die krag het om voort te gaan met u opleiding nie”
-Vra en luister medelydend: as u u geliefde vra hoe hulle voel, voel hulle dalk siek, moeg, pyn of depressief. As u net wil hoor dat u geliefde goed voel, hou op om te vra hoe hulle voel. Andersins voel hulle moontlik u verwagtinge, teleurstelling, u belangstelling of u onvermoë om te verstaan. In plaas daarvan sou u kon vra: “Hoe gaan dit met u vandag?” of “Hoe gaan dit?”
Wees begripvol en medelydend
Chroniese siektes bied baie uitdagings in verhoudings in ‘n tyd waarin gemak en sosiale ondersteuning van die allergrootste belang is. Hier is ‘n paar maniere waarop u kan help:
· Wees geduldig. Onthou dat u geliefde baie aanpassings moes doen en die beste doen.
· Bied gereelde, liefdevolle vertroosting en ondersteuning.
· Bied praktiese hulp aan, soos om boodskappe te doen, huiswerk te help en inkopies te doen.
· Neem u geliefde na mediese afsprake. Toon belangstelling in hul sorg en bied emosionele ondersteuning.
· Vind ‘n manier om tyd saam deur te bring deur aktiwiteite met lae intensiteit te doen, soos om ‘n film of video te kyk, iets te eet, veld toe te gaan, ‘n speletjie te speel, in die park te sit of ‘n massering te gee.
· Moenie voel dat u probleme moet oplos of aanbevelings moet gee nie. Baie keer is net genoeg om daar te wees en medelye te betoon.
· Spreek waardering uit vir alles wat u geliefde u kan gee, ongeag hul perke.
· Vra hoe u u geliefde kan help.
· Spreek bewondering uit vir die krag en moed wat u waardeer in u geliefde terwyl hy die uitdagings van die siekte die hoof bied.
· U geliefde kan gemoedswisselings hê as gevolg van die spanning en die uitdagings van ‘n chroniese siekte. Moenie emosionele reaksies as persoonlik beskou nie.
· Probeer sensitief wees vir die gevoelens van u geliefde. Luister en leer om waarnemend te wees.
· Bly in kontak met u geliefde. Al is hy nie so aktief en betrokke by wedersydse belange of vergaderings soos vroeër nie, moet u hom tog uitnooi.
Aanvaar en hanteer veranderinge
Veral CFS is ‘n baie onvoorspelbare siekte. Simptome kan wissel, dus kan u geliefde nie ure of selfs minute na ‘n gebeurtenis kan voorspel nie. Probeer om begrip hiervan te hê en verwag die volgende situasies:
· Soms neem dit langer as gewoonlik om sekere dinge te doen.
· Dit sal vir hom moeilik wees om definitiewe planne te maak.
· Hy het miskien nie die energie om soms tyd saam met u deur te bring nie.
· U onthou miskien nie sekere dinge nie (CFS kan kognitiewe probleme en ‘breinmis’ veroorsaak).
· U kan onvoorspelbare hoogte- en laagtepunte hê.
Sorg vir jouself sodat jy sorg en ondersteuning kan bied
CFS en FMS is nie net moeilike siektes vir die lyer nie, maar ook vir diegene wat daarvoor sorg. Dit is normaal om teleurgesteld, ongeduldig, skuldig, gefrustreerd, hulpeloos en mislei te voel. Dit is belangrik dat u goed na u omsien sodat u ondersteuning kan bied. Dit beteken behoorlik eet, gereeld oefen, u stresvlak bestuur en openlik oor u gevoelens met ‘n familielid, vriend of professionele berader praat. Praat met u geliefde oor hoe die siekte u verhouding beïnvloed. Vra hoe julle mekaar kan help. Onthou dat ondersteuning van familie en vriende noodsaaklik is vir die welstand van mense met CFS en FMS.
U ken u geliefdes, u weet hoe hulle is, hoe hardwerkend en aktief hulle was, moenie toelaat dat hulle soos lui behandel word nie as gevolg van ‘n siekte, u ken hulle beter as enigiemand, en laat geen gesondheidswerker toe dat hulle slegter voel as hulle al voel.
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