Vivichronique, ‘n 39-jarige jong moeder en lid van die Carenity France-platform, ly al 12 jaar aan fibromialgie. Sy wou ons vertel van die eensaamheid wat sy gevind het tydens siekte tydens opsluiting.
Hoe lank het u al fibromialgie gehad? Hoe manifesteer u ‘krisisse’?
Ek is 12 jaar gelede amptelik gediagnoseer . My ‘krisisse’ word toenemend gewelddadig en selfs gruwelik . Soms voel ek dat ek deur ‘n vragmotor raakgery is omdat die pyn in my bene so erg is. Ek het die onaangename gevoel dat ek “geborsel” word asof ek kneusplekke oor die dele het. Die geraas en die lig is soms ondraaglik vir my. My liggaam veroorsaak ook tendonitis . Ek sal soveel dinge hê om te sê …
Benodig dit gereeld of selfs daaglikse versorging?
Ek neem daagliks baie behandelings : morfien, antidepressante, slaappille, antiepileptika. Ek gebruik ook die Tens-pynstiller-masjien. Ek het ook ‘n paar hipnose- oefeninge probeer om tuis na te luister nadat ek by my dokter gedoen het. Hulle volg my ook in ‘n pyn sentrum .
Kry u steeds hierdie sorg tydens opsluiting? Indien nie, wat dink u is die rede?
Nee, daar is geen sorg vanaf die begin van die opsluiting nie . My pynsentrum is saam met die dokters opgeneem om die Covid-19-pandemie te hanteer. Die rehabilitasiesentrum.
Ek het ook geen sessies met my fisioterapeut gehad vir selfrehabilitasie deur telekonsultasie nie.
Watter uitwerking kan dit hê op u gesondheid as u nie hierdie sorg ontvang nie?
Ek het gereelde aanvalle . Ek het ‘n groot slapeloosheid . Ek het ook tans drie kinders by die huis weens opsluiting. Ek voel uitgeput. My moreel het gely en ek voel baie eensaam al is my man hier om my te help. Arme ding, hy is weerloos en kan niks doen in die gesig van my pyn en krisis nie.
Kan u hierdie aandag alleen vergoed of met behulp van u familie of vriende, byvoorbeeld deur selfrehabilitasie of fisiese aktiwiteit?
Nee, behalwe vir die Tens (pynverligtingstoestel), weet my man hoe hy dit moet aantrek, want hy het saam met my gekom toe ek geleer het hoe om dit te gebruik. As ek pyn het, sit hy ‘n Versatis-pleister op my ook.
Kommer u hierdie gebrek aan sorg? Indien wel, waarom?
Oor ‘n lang tydperk, ja heeltemal! Dit speel op my gesondheid, my sedes, beklemtoon eensaamheid en opsluiting .
Watter raad (s) sou u gee aan pasiënte in dieselfde situasie?
Ek sal diegene aanraai wat steeds toegang tot u pynsentrum het om hulle te skakel. Ons kan nie so gedurende die hele opsluiting bly nie. Ek sal ook diegene wat gelukkig is om mense wat vertrou het om aan te spreek, aanraai om dit te doen. En laastens, indien moontlik, neem elke dag tyd om gemaklik te raak en te rus, en voel veral nie skuldig daaraan nie .
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