20 Ways to ImMost people don’t believe in fibromyalgia, they’re doing everything in their minds. In your life, you’ve also faced such people. Sometimes people ask about your disease from you, so this is our time to explain how fibromyalgia is because they don’t experience what we are experiencing. Fibromyalgia is the hardest thing you can’t understand when dealing with people. Agine What the disorder of fibromyalgia feels like
Fibromyalgia is a perfect day-to-day reward. Making the most of it when you wake up and can drive. If you wake up and are unable to move, don’t. Read a book, watch a movie, get some rest. Maybe it’s not what you want, but for that day it’s what you have to do. It’s a new day tomorrow and may be different from yesterday. Thank you for having you tomorrow because there’s not a lot of people. I know when you’re in constant agony, it’s hard to feel that way, but there’s always something good to do every day.
Few words to describe how awful it is, it’s a living hell, it makes you feel like I don’t have any more time. But we’ve gathered a few of our members ‘ pain definition below tell us.
1.Imagine the worst flu you’ve ever had, multiply it by 10, thenimagine you’ve been beaten, hit by a car, then think of the most exhausted you’ve ever been, and multiply it by 10. And perhaps you can imagine how it feels like a better day with Fibromyalgia. A bad day is really challenging all understanding and understanding.
2. With the flu plus you cut your whole lawn by hand for scissors, you’ve completed a 10K. That kind of sore. But the next day everyone expects you to do it all over again because you’re not looking sick.
3. Pain moving around your body. It takes up a spot and you hold your breath until it passes and then it moves to a different spot. You’re struggling to say you don’t hurt and you’re trying not to sob and scream. You’re exhausted, but you can’t just sleep a version of sleep where you hear everything and get wide awake, filled with adrenaline. Heart racing and tired, if you can, you’re going back down. Sometimes the tips of your finger and toe are numb and you can’t stand being cold. You’re knotting and twisting your muscles and you’re trying to relax and not stress because next might be an exciting headache. You have depression bouts and I personally run away to cope with a lot in music or fantasy.all the time you can’t talk right and you’re struggling to think clearly and concentrate. Okay, for now that’s enough. Simply an idea.
4. This makes me feel like a man of copper. That’s fine, the tin man in EVERY single joint that needs to be oiled. And somebody who brings a torch to ALL my muscles that are sore. With a trap in my heart. Yeah, that’s the sum of it, what a miserable
5. existence. Marjie C–In my own body it makes me feel like a prisoner! Never know what torture will happen next
6. Jessica C–I feel like I’ve been struck with a hammer, my muscles feel like they’re being ripped and tugged, I feel like I’ve got a 24 that’s sitting on my back all day, sweating to death… 7. Vickie M-I feel like I’ve got a little elf running around with an ice pick inside my body and randomly stabbing my joints and muscles 24/7.
8. Kimmie G-Like a triple trailer running over me; like I need to replace my hips; cut me off at the waist because lower half just isn’t being used friendly; your worst X’s quadrillion with the worst flu 2 hit mankind & a memory span the size of a knat…… otherwise, I feel great!
9. Tracey W–I have a ghost who enjoys manipulating parts of my body like someone digging their nails into your skin and gripping your muscles in a strong vice grip.
10. A vice grip is on your head, your shoulders, hips, knees, ankles, feet and hands ache are weighed down by a 20-pound backpack. On the tip of that ache is a tingle like when your foot falls asleep… except that it’s over your whole body instead of just your foot. Your eyes are stress-sensitive, your skin touch-sensitive, your nose smell-sensitive. The lack of restful sleep will keep you tired and groggy.
11. Kerryn E–It’s like hungover and intoxicated but also like flu after a full-body intense workout and 10 rounds with Mike Tyson but lost and live on a different planet because I’m an outsider compared to others they can’t understand my life like
12. It’s a HELL of life! Every day you hurt. The pain is constantly going about. Your skin hurts just when you think there’s no other place to hurt. It’s like you walked over a Mack truck, and over again. Dushing takes me hours, putting on makeup, and drying my face. I have to sit down and rest by the time I’m done. Sleeping at night is frustrating because you can’t find a spot that doesn’t hurt.
13. That’s wrong. Pain that intensifies from head to toes as if someone pours a hot liquid down your throat and travels through your body’s inside. The toughest thing is trying to keep it all optimistic. You never know if one day it will manifest as IBS, the next it is migraine, or Epstein Barr. Then on top of that anxiety. I have more signs that occur every day. I’ve got these terrible skin marks from where scratching got so bad that I cut through the skin and bleed it. It left awful marks that look like I’ve been burned. Unfortunately, from the inside comes the fire.
14. Unbearable burning pain in my entire body, which feels like I’ve been set on fire. Stabbing feet and heels pain that feels like I’m walking on glass shards. Take the tiredest you’ve ever experienced and multiply it by 100. The 10-fold flu. Burning pain when touching the skin. Pain that does not come with any treatment. So much pain and tiredness, I can’t work. Almost losing all I worked so hard for, waiting for approval of my disability for 2 years. Living with severe weakening pain and still seeming normal, which makes me feel guilty I can’t work because people treat me like
15. Sandra L–A thief my life has been robbed. It’s not the same two days. You never know what it will throw at you. A new flare is a new pain each day. Being dormant. Just to get through the day, you’re battling your body. No one should have to live without such a pain that most people can not handle n we have no choice but to accept it. The world of medicine has really let us down.I’m lazy and just don’t want to work.
16. That’s right. Tracy W–Like someone noticed all my muscles and tendons draw-cords, then pulled them straight up the leg. I’m feeling a lot like that and it won’t be a wedge.
17. Consider a rope with a nylon. Twist it to the grain. See the small openings? In them, pour crushed glass and sand. Now closed the cord twist. Notice the grit that prevents the nylon from returning to the original point? Then imagine that the nylon cord in your arms, elbows, wrists, ankles, feet, and toes is every muscle fiber, tendon, and ligament. Put the shoes on. Shoes, shoes. Is it inconvenient?
Try to walk now. Driving. Waiting. Standing. Shopping at grocery stores. Sounds bad, isn’t it? Say you’re not getting any break now. Add each part of your back to the list a few days. Increase nausea. Add the headaches of migraine. You just want to sleep, but you don’t want to sleep.
Your head has a foggy feeling. You usually lose words in the middle of the sentence. It’s not possible to think straight. Even if you’re not, people think you’re stupid. Add to the mix mental health issues. Did you feel overwhelmed yet? It’s a perfect day. It could be worse tomorrow. It is not something you can budget for. You get no warning whatsoever.
18. This feels like acid flows into me when I have a flare-up and burns me from the inside out. Yet “ordinary” days I’m trying not to acknowledge the pain; I’m just doing what I need to do, but it’s always in the back, preventing me from being everything I think I can be.
Nerve pain is hideous and although I have pain in my neck, hips, shoulders, hands and feet that’s pretty constant, I’m going to get a stab in my intestine or my chest that comes out of nowhere and takes away my breath. The last time I felt good was all day long when I was put on steroids by the doctor. I didn’t have any pain and it was glorious, then my stomach burned and cramped. The medicines I had to stop. However, I am more disturbed by the memory problems and exhaustion. Perhaps because my mother has Alzheimer’s and I’m terrified that it’s coming for me.
19. Janice R–I feel like I’m tied up with two horses and they’re going in different ways. My hands to one of my horses to the other. My sockets are completely out of place. During times of flare-ups, it becomes terrible. Not as bad at other times, but still in pain.
20. Twenty-five. June J–I feel like somebody in my head is spinning and deciding what and when I become dumb, stupid and dizzy.
